Resources

This page includes palliative care resources that have been vetted by members of the Palliative Care Initiative (PallCI). Click the sections below for the full set of resources.

Articles

  • Adler, E., Goldfinger, J., Kalman, J., Park, M., & Meier, D. (2009). Palliative care in the treatment of advanced heart failure. Circulation, 120, 2597 – 2606.
  • Curtis, J., Engelberg, R., Wenrich, M., Nielsen, E., Shannon, S., Treece, P., et al. (2002). Studying communication about end-of-life care during the ICU family conference. Journal of Critical Care, 17 (3), 147 – 160.
  • El-Jawahri, A., Greer, J., & Temel, J. (2011). Does palliative care improve outcomes for patients with incurable illness? A review of the evidence. The Journal of Supportive Oncology, 9(3), 87 - 94. Retrieved from http://www.supportiveoncology.net/jso/journal/articles/0903087.pdf
  • Eti, S. (2011). Palliative care: An evolving field in medicine. Primary Care: Clinics in Office Practice, 38 (2), 159 – 171.
  • Gardner, D.B., (2012) Quality in Life and Death: Can We Have the Conversations? Nursing Economics, The Journal for Health Care Leaders http://www.nursingeconomics.net/necfiles/specialissue/2012/Gardner.pdf
  • Goldsmith, B., Dietrich, J., Du, Q., & Morrison, R. (2008). Variability in access to hospital palliative care in the United States.  Journal of Palliative Medicine, 11 (8), 1094 – 1102. 
  • Jacobsen, J., Robinson, E., Jackson, V., Meigs, J., & Billings, J.A. (2011). Development of a cognitive model for advance care planning discussions: Results from a quality improvement initiative.  Journal of Palliative Medicine, 14 (3), 331 – 336.
  • Ko, D., Perez-Cruz, P., & Blinderman, C. (2011). Ethical issues in palliative care. Primary Care: Clinics in Office Practice, 38 (2), 183 – 193.
  • Macauley, R., & Billings, J.A. (2011). Teaching small groups in palliative care.  Journal of Palliative Medicine, 14 (1), 91 – 95. 
  • Moody, K., Siegel, L., Scharbach, K., Cunningham, L., & Cantor, R. M. (2011).  Pediatric palliative care. Primary Care: Clinics in Office Practice, 38 (2), 327 – 361.
  • Morrison, R., Penrod, J., Cassel. B., Caust-Ellenbogen, M., Litke, A., Spragens, L., & Meier, D.  (2008). Cost savings associated with U.S. hospital palliative care consultation programs. Archives of Internal Medicine, 168 (16), 1783 – 1790.
  • Peek, C., & Oftedahl, G. (2010). A consensus operational definition of patient-centered medical home (PCMH) also known as Health Care Home: A joint product of the University of Minnesota and the Institute for Clinical Systems Improvement. Bloomington, MN: Institute for Clinical System Improvement.
  • Romesberg, T. (2007). Building a case for neonatal palliative care. Neonatal Network, 26 (2), 111 - 115.
  • Temel, J., Greer, J., Muzikansky, A., Gallagher, E., Admane, S., Jackson, V., et al.  (2010). Early palliative care for patients with metastatic non-small-cell lung cancer. The New England Journal of Medicine, 363 (8), 733 – 742.
  • Toce, S., & Collins, M. (2003). The FOOTPRINTS model of pediatric palliative care. Journal of Palliative Medicine, 6 (6), 989 – 1000.
  • Weissman, D., & Meier, D. (2009). Center to advance palliative care inpatient unit operational metrics: Consensus recommendations. Journal of Palliative Medicine, 12 (1), 21 – 25.
  • Weissman, D., & Meier, D. (2011).  Identifying patients in need of a palliative care assessment in the hospital setting: A consensus report from the Center to Advance Palliative Care.  Journal of Palliative Medicine, 14 (1), 1 – 7.
  • Weissman, D., Morrison, R., & Meier, D. (2010). Center to Advance Palliative Care palliative care clinical care and customer satisfaction metrics consensus recommendations. Journal of Palliative Medicine, 13 (2), 179 – 184.
  • Werb, R. (2011). Palliative care in the treatment of end-stage renal failure.  Primary Care: Clinics in Office Practice, 38 (2), 299 – 309.
  • Wilder Research. (2009). Integrating best practices into collaborative learning methods for Health Care Home providers. Retrieved from www.health.state.mn.us/healthreform/homes/collaborative/CollaborativeLearningEvaluation.pdf

Associations, Organizations, and Networks

Blogs

  • Pallimed: A hospice & palliative medicine blog
    http://www.pallimed.org    
    Provides palliative drugs and prognosis link

Education

Journals

Recommended Literature

  • Davis, D. (1996). Empty cradle, broken heart. Golden, CO: Fulcrum Publishing.
  • Genova, L. (2009). Still Alice. New York, NY: Pocket Books.
  • Fadiman, A. (1997). The spirit catches you and you fall down: A Hmong child, her American doctors, and the collison of two cultures. New York, NY: Farrar, Straus, and Giroux.
  • Hanson, W. (1997). The next place. Golden Valley, MN: Walden House Press.
  • Hedderman, L. (2011). Preparing your children for goodbye: A guidebook for dying parents. San Francisco, CA: Growth House.
  • Huntley, T. (2002). Helping children grieve. Minneapolis, MN: Augsburg Books.
  • James, J., & Friedman, R. (2001). When children grieve. New York: Harper Collins.
  • Keeley, M. & Yingling, J. (2007)  Final Conversations: Helping the Living and the Dying Talk to Each Other. Vanderwyk & Burnham
  • Kroen, W. (1996). Helping children cope with the loss of a loved one. Minneapolis, MN: Free Spirit Publishing.
  • Kuebelback, A. (2003). Waiting with Gabriel. Chicago, IL: Loyola Press.
  • Latta, S. (2003). Dealing with the loss of a loved one. Philadelphia: Chelsea House.
  • Levang, E. (1998). When men grieve. Minneapolis, MN: Fairview Press.
  • Lynn, J. & Harrold, J. (2001). Handbook for mortals: Guidance for people facing serious illness. New York: Oxford University Press.
  • Pausch, R., & Zaslow, J. (2008).  The last lecture. New York: Hyperion.
  • Richmond, M. (2000). The gift of a memory. Minneapolis, MN: Richmond Studios.
  • Schaefer, D., & Lyons, C. (2001). How do we tell the children? A step-by-step guide for helping children two to teen cope when someone dies. New York: Newmarket Press.
  • Worden, J. (1996). Children and grief. New York: Guilford Press.

Resources for Children

  • Brown, L., & Brown, M. (1996). When dinosaurs die. New York: Little, Brown, and Co.
  • Buscagalia, L. (1982). The fall of Freddie the leaf: A story of life for all ages. Slack Inc.
  • Gaes, J. (1987). My book for kids with cansur: A child’s autobiography of hope. Aberdeen, S.D.: Melius & Peterson Publishing.
  • Heegaard, M. (2001). Saying goodbye to your pet. Minneapolis, MN: Fairview Press.
  • Mellonie, B., & Ingpen, R. (1983). Lifetimes. New York: Bantam Books.
  • Rylant, C. (1997). Cat heaven. New York: Blue Sky Press.
  • Rylant, C. (1995). Dog heaven. New York: Blue Sky Press.
  • Shriver, M. (1999). What’s heaven? New York: St. Martin’s Press.
  • Silverman, J. (1999). Help me say goodbye. Minneapolis, MN: Fairview Press.
  • Stickney, D. (1997). Water bugs and dragonflies. Cleveland: The Pilgrim Press.

Texts and Handbooks

  • Armstrong-Dailey, A., & Zarbock, S. (2001). Hospice care for children. New York: Oxford University Press.
  • Carter, B., & Levetown, M. (2004). Palliative care for infants, children and adolescents. Baltimore, MD: The Johns Hopkins University Press.
  • Ferrell, B., & Coyle, N. (2008). The nature of suffering and the goals of nursing. New York: Oxford University Press.
  • Ferrell, B., & Coyle, N. (2010). Oxford textbook of palliative nursing. New York, NY: Oxford University Press.
  • Goldman, A., Hain, R., & Liben, S. (2006). Oxford textbook of palliative care for children. New York, NY: Oxford University Press
  • Hanks, G., Cherny, N., & Christakis, N. (2009). Oxford textbook of palliative medicine. New York, NY: Oxford University Press
  • Institute for Clinical Health Systems Improvement (ICSI). End of Life Care: 6 Leadership Action. (Reprint from Healthcare Executive, American College of Healthcare Executives. January/February 2011.
  • Institute of Medicine. (2003). When children die: Improving palliative and end-of-life care for children and their families. Washington, DC. The National Academies Press.
  • Kubler-Ross, E. (1969). On death and dying. New York, NY: Simon and Schuster Press.
  • Kubler-Ross, E. (1983). On children and death. New York, NY: Touchstone.
  • Matzo, M. & Sherman, D. (2006). Palliative care nursing. New York, NY: Springer.
  • McPhee, S., Winker, M., Rabow, M., Pantilat, S., & Markowitz, A. (2011). Care at the close of life: Evidence and experience. New York, NY: McGraw Hill.
  • Nelson, W. (2009). Handbook for rural health care ethics: A practical guide for professionals. Lebanon, NH: University Press of New England.
  • Palliative Pharmacy Care, by Jennifer Strickland. Reference with case studies.
  • Puchalski, C., & Ferrell, B. (2010). Making health care whole. West Conshohocken, PA: Templeton Press.
  • Quill, T. (2010). Primer workbook. Glenview, IL: American Academy of Hospice and Palliative Medicine.
  • Storey, P., & Knight, C.  Hospice/palliative care training for physicians: The Unipac book series. New Rochelle, NY: Mary Ann Liebert Publishers.
    • The Hospice and Palliative Medicine Approach to Life-Limiting Illness
    •  Alleviating Psychological and Spiritual Pain in Patients with Life-Limiting Illness
    • Assessment and Treatment of Physical Pain Associated with Life-Limiting Illness
    • Management of Selected Nonpain Symptoms of Life-Limiting Illness
    • Communication and the Hospice and Palliative Physician’s Role on the Interdisciplinary Team
    • Ethical and Legal Dimensions of Treating Life-Limiting Illness
    • The Hospice and Palliative Medicine Approach to Caring for Patients with HIV/AIDs
    • The Hospice and Palliative Medicine approach to Caring for Pediatric Patients.
    • The Hospice and Palliative Medicine Approach to Selected Chronic Illnesses: Dementia, COPD, and CHF.
  • Wrede-Seaman, L. (2005). Pediatric pain and symptom management algorithms for palliative care. Seattle, WA: Intellicard.
  • Zerwekh, J. (2006). Nursing care at the end of life: Palliative care for patients and families. Philadelphia: F.A. Davis.

Tools

Websites

University of Minnesota HRSA Northeast AHEC mnHEALTHnet

The website is funded by the Northeast Minnesota Area Health Education Center's mnHEALTHnet (Northeast Minnesota Interprofessional Rural Health Network) Palliative Care Initiative (PallCI). PallCI is a Rural Health Workforce Development Program funded through Health Resources and Services Administration (HRSA), Office of Rural Health Policy #6G98RH19709-01-01.